Monday, April 20, 2009

What to Write About

When I first thought of doing a blog, I wondered what I would write about. I settled on Caregiving since that is what I presently know best. I am not talking about the person who stops by every now and then to say hi and see how things are going, and then complains about having to do that much. I am talking about those of us who are there 24/7. Who sees the person every day and doesn't have to ask how they are doing, they just know. The person who has given up their lives in order to care for their loved one. Yes, when you take on this job, you lose a large portion of your life. You are not the one who always say that you are doing it because your loved one gave so much up for you. Oh, sometimes you do, but there are more times that you wonder why you are doing it. Why you have given up so much for this person, no matter how much they love you. If you say this out loud to someone who is not a Caregiver, you sound harsh and not a very nice person. Only another Caregiver understands what you mean. You say if I don't do it who will? That is something you think about constantly. You worry about getting sick because, if you do, you look around to see who else would or could step in. Even something as minor as a slight cold is reason to panic. You don't want to infect your loved one and make them sicker than they already are, but who takes care of them when you can't? And who takes care of you? There are other family members, but they are too old or too busy. They have lives.

And then there are friends, not friends of your loved one, but your friends. You don't have the time to see them. You have to decline invations to parties, go out to eat, or any other social event, because you are needed by your loved one. Unless they have gone or are going through this, many don't understand and just drift away. They may call now and then and ask how things are going and let's get together, but you know that your time has to be devoted to you loved one.

If you are lucky(?), you work out side the home. That is a two edge sword. You get out and get to talk to others about something other than the person you care for, but there is the fact you have to have someone come in to care for your loved one. Having someone come into your home is a whole other post. And there is the worry. If your loved one needs constant care, you have to make sure that the person stays the whole time you are at work. If you have a late meeting or get stuck in traffic, can they stay? If your loved one can be left for a few hours alone, will they be OK? What if they fall and can't get to the phone? Do you have a home monitoring system installed? And will they be able to use it? That is why I say you are lucky(?) to be working outside the home.

That is what I was going to write about, but my days as a Caregiver are over. My mother died March 1.

3 comments:

  1. Hi, CAPLMA. I'm glad to see you've started blogging.

    Perhaps you can write about the adjustment to NOT being a caregiver? I think it's a concept that's gotten little attention, but it's definitely an adjustment.

    I read another blogger named Dave at Five String Guitar who is in a similar situation. After several years of caring for his wife who was ill with leukemia, he know is alone, raising a teenage son. Dave has written about what it's like to suddenly have time that you didn't before and how odd it feels to have to fill up that time.

    It's just a suggestion. I know you. You've got plenty of interesting stories to tell. I look forward to reading them.....

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  2. Thanks, Lisa. Yes, I just felt that I needed some background to refer to in the future. Now I just have to figure out how to make this more interesting with pictures and videos.

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  3. Let me know if you need any help. My cell phone number is on my facebook profile.

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